Below are the following organizations that help with Financial Support:
The Brett Boyer Foundation – Supports CHD research, family & provider support, mental health assistance, and awareness; honors Brett’s life. The Brett Boyer Foundation was created in loving memory and in honor of our beloved daughter, Sadie Brett Boyer. Brett was diagnosed prenatally with Down syndrome and a congenital heart defect (CHD).Through her seven inspiring months of life, Brett was a bright light for us and everyone who loved her. Our mission is to fund CHD research, support CHD families & providers, and to celebrate the Down syndrome community. www.thebrettboyerfoundation.org
Levi’s Legacy – At Levi’s Legacy, our mission is clear – to serve and support families facing the daunting reality of CHDs, along with the dedicated medical professionals who stand by their side. Our mission is not just to weather the storm with them but to guide them towards the sunshine that awaits on the other side of their challenging journey. We provide care packages, financial grants, grief retreats, community events, college scholarships, and emotional support as families charge the storm against CHD. https://thelevilegacy.org/
Stronger Hearts Foundation – Helping families of children with congenital heart disease (CHD) during the hardest days of their lives with emergency financial assistance for housing, day-of-surgery care, and a community that never lets them face CHD alone https://strongerheartsfoundation.com
Ava’s Heart- is a unique nonprofit charity dedicated to providing financial assistance for organ transplant patients who cannot afford necessary treatment and care. Founded by heart transplant recipient Ava Kaufman, we provide pre-transplant and post-transplant patients a wide variety of basic essentials not covered by insurance. Without outside financial assistance, many families become financially insolvent, or even worse, some patients do not survive. Ava’s Heart also provides emotional and psychological support for both transplant patients on the waiting list, as well as those who now live with the realities of post-transplant life. avasheart.wpengine.com/about-avas-heart/
Haydens House – We host different fundraisers each year in memory of Hayden. With the funds raised from these events, we choose a fellow heart family whose child is beating the odds against CHD but whose family could also benefit from financial help towards outstanding medical bills, travel expenses and just everyday living. Unfortunately health insurance companies do not always cover all medical procedures, hospital stays, or medicines and equipment that need to be available for home care. In addition to those expenses, several families must travel far distances to ensure their child is receiving care from the absolute best hospitals, giving their warrior the best fighting chance. Because of this, we have decided to make it our mission to support these families both financially and emotionally. If you or someone you know has a heart warrior and could benefit from a grant. In addition to financially supporting these families, we also distribute care packages to five pediatric cardiac units on the East Coast in honor of Hayden’s birthday in March. As a grieving family, we are also passionate about supporting the bereaved heart community. Through Hayden’s Holiday, families are granted a mini vacation to get away and spend time with their loved ones. Additionally, we are thrilled to have Hayden’s House of Healing – our very own retreat house that allows us to host retreats all throughout the year for mothers and fathers who have lost a child to any type of loss. https://www.haydenshouse.org
Tymeless Hearts, Inc. – A 501c3 charitable organization devoted to helping families impacted by congenital (at birth) heart defects. Tymeless Hearts was founded in 2006 by Beth Brown after having and losing her son Ethan to hypo-plastic left heart syndrome, which is a CHD where babies are born with basically half of a heart. While her son only lived for 3 short months, Beth loved every single second of being his mom. After meeting so many heart families who were struggling she felt led to do what she could to help other heart families. Now Tymeless Hearts is all about remembering many heart angels and honoring many heart warriors. https://tymelesshearts.org
Victoria Ciara Foundation – We provide Financial Assistance for families and individuals impacted by CHD. Wellness Assistance in the form of: connections to resources, mentoring opportunities, gift cards for “date nights”, and vouchers for massages/yoga classes. Scholarships for high school students with a CHD diagnosis. Campaigns that provide items to help those who are hospitalized in a CHD cardiac unit, and educational and socialization zoom sessions. https://victoriaciarafound.org/
Heartfelt Dreams Foundation -Is dedicated to helping congenital heart defect patients and their families with emotional support, educational programs, and financial assistance primarily in the form of transportation and hotel accommodations for CHD patients in need of surgery at a specialty heart center.https://www.heartfeltdreamsfoundation.org/
Noah’s Smile – was founded to honor the joyful and compassionate spirit of Noah, a remarkable child who touched countless lives. Our mission is to support families with children facing serious illness, offering the resources and assistance needed to navigate difficult times. Through direct grants, partnerships, and educational outreach, we strive to uplift families and ensure they are never alone on their journey. Noah’s Smile brings comfort, strength and resources to children facing serious illnesses and their families. Inspired by the light and joy Noah shared with others, we offer support through direct grants, educational resources, and partnerships with like-minded organizations. Join us in honoring Noah’s legacy by spreading kindness, resilience, and hope to those who need it most, uplifting families and ensuring they never feel alone during trying times. https://noahssmile.org/
Jamie’s Heart Foundation – provides financial assistance for non-covered or uncompensated medical expenses. This can include medications, co-pays, medical equipment, etc. https://jamiesheart.org/about
RaeRae of Light® – Was founded in 2020 in memory of our angel Reagan, who was born with a congenital heart defect (CHD) who we sadly lost at six months old. While we are devastated, this family-operated nonprofit is dedicated to creating awareness and providing financial assistance to families affected by CHD. https://www.raeraeoflight.org/
Miles Of Love – Miles of Love is a 501(c)(3) devoted to providing hope, comfort, and financial support to families with children battling congenital heart defects (CHDs). Every challenging journey with CHD is unique. Our goal is to support heart families during their journey and make the miles ahead a little smoother and full of love. https://milesoflove.org/
The Paul Magnus Foundation – a 501(c)(3) non-profit created to honor our Heart Warrior, Paul. We offer qualified families financial grants for their housing expenses while their child is receiving care in the hospital. https://paulmagnusfoundation.org/
Yellow Brick Road: The Holden Flynn Foundation – seeks to serve the community through raising awareness for congenital heart disease, supporting those children and families affected by the illness, enriching the lives of critically ill children through our wagon project, and looking ahead towards the eradication of CHD. Care bags and financial assistance allow families stuck in the hospital to focus on recovery. Our scholarship program gives them peace of mind that hospital bills won’t prevent their children from going to college. We provide hospitals with wagons capable of towing IV poles. The wagons are made of non-porous materials and stainless steel. They provide critically ill children with a much needed escape their hospital room. https://www.ybrf.org/