Below are the organizations by state:
Alabama
Alaska
Arizona
RaeRae of Light® – Was founded in 2020 in memory of our angel Reagan, who was born with a congenital heart defect (CHD) who we sadly lost at six months old. While we are devastated, this family-operated nonprofit is dedicated to creating awareness and providing financial assistance to families affected by CHD. https://www.raeraeoflight.org/
Arkansas
A Heart Like Mine – We focus on making the maximum positive effort for our community by sharing knowledge about congenital heart disease and how it affects so many across the world, but more so right here in our community. Our members and volunteers provide the momentum that helps us affect change and help families who are directly impacted. https://teamannabelle.org/
California
Isaac Special Heart Foundation – Nonprofit organization located in Oakley, California. We are committed to saving the lives of children born with heart disease and defects and providing support for their families. https://isaacspecialheartfoundation.org/
Camp del Corazon – provides year-round opportunities for children living with the challenges of heart disease. We provide a free overnight summer camp for children ages 7-17 as well as programs that offer growth, education and support for CHD children, young adults, and their families. https://www.campdelcorazon.org/
Colorado
Jessie’s Heart – mission is to provide support for children with heart defects that reduces emotional, physical and financial stress for the family. jessiesheart.org
2HEARTS – a nonprofit that provides support and education for children, youth and families affected by Congenital Heart Disease. https://www.2-hearts.org/
Connecticut
Delaware
Florida
The Healing Hearts Project – is a community charity directly serving the patients and families of both Wolfson Children’s Hospital and UF Pediatric Cardiology in Jacksonville, FL who are undergoing treatment for congenital heart defects (CHD). https://www.thehealingheartsproject.org/
Georgia
WONheart Corporation– A 501c3 nonprofit organization, based in Metro Atlanta, Georgia, USA. We’re committed to building a community that empowers individuals living with and those who have been affected by CHD and ensure a productive life through proper care and support. Through Support Groups (virtually and in-person), financial assistance, Nutrition/meal programs. We aim to support the WHOLENESS of those affected. www.wonheartcorp.org
Hawaii
Kardiac Kids – A support group for families, young adults and caregivers affected by congenital and acquired heart defects. Families of children diagnosed with various cardiac conditions meet regularly to offer support to one another. https://www.hawaiipacifichealth.org/health-wellness/classes/support-groups/general-support-groups/kardiac-kids/
Idaho
Illinois
The Organization for Understanding Children’s Hearts – T.O.U.C.H. is to empower families, children and adults with congenital heart defects. We believe that through emotional support, education, information sharing and public awareness, we can make a difference. https://touchhearts.org/
Indiana
Iowa
Kansas
Kentucky
Kerrington’s Heart – Is a 501(c)(3) non-profit that is dedicated to the education, support, and encouragement of Kentucky children with heart defects, their families, and caregivers. https://www.kerringtonsheart.org/
Louisiana
Maine
Maryland
Massachusetts
It’s My Heart – New England – supporting, advocating for, and educating families affected by CHD in New England. 100% volunteer run. Www.ItsMyHeartNewEngland.org
Michigan
The Cortney Gives BAK Foundation – Founded by CHD heart warrior Cortney to fund congenital heart defect research nationwide and raise awareness, especially for single‑ventricle/Fontan conditions. cortneygivesbak.com
Jack and Lyndi’s Fairytale Foundation – Provide comfort items for families in the hospital. Alanna and Angie are two heart moms who met at Mott Children’s Hospital in Ann Arbor, Michigan. Their two children, Jack and Lyndi, were both born with a Congenital Heart Defect (CHD) called Hypoplastic Left Heart Syndrome (HLHS). Both Families spent years within the hospital and due to spending more time within a hospital with their children than at their homes Alanna and Angie have decided to help other families. Learn more about the Lane and Rock families and what drives them to help other families create moments while living with the hospital. https://www.jlfairytalefoundation.org/
Minnesota
Lasting Imprint – A non-profit corporation established by individuals committed to fighting congenital heart defects (CHD). Our inspiration comes from the big hearts of the children and adults that have fought and continue to fight CHD every day. Their hearts have touched ours and it is our hope that you join us in our efforts to leave a lasting imprint on the CHD community. https://lastingimprint.org/
Mississippi
Missouri
Ollie Hinkle Heart Foundation – Funds critical CHD research, raises awareness, and supports families impacted by congenital heart disease in honor of Ollie Hinkle. theohhf.org
Montana
Montana Brave Hearts – Nonprofit supporting CHD families in Montana with awareness, family support, financial help, and research funding.Montana Brave Hearts began as Evit’s Hope in the fall of 2022, founded by Kalee Plowman, a heart mom in Polson whose son, Evit, was born with Hypoplastic Left Heart Syndrome. What started as a way to raise funds for research quickly grew into a broader mission—one that would offer support and resources to families across the state who are navigating the challenges of critical congenital heart defects. In 2023 and 2024 the team grew to 4 founding heart moms, all who have children with single ventricle hearts, and call the state of Montana home. Recognizing the lack of resources across the state, these mothers teamed up to collaborate and expand the Mission of the work of Montana Brave Hearts, taking the impact from the Northwest corner of the state to encompass the entirety of Montana. Today, Montana Brave Hearts is a nonprofit committed to both funding life-changing research and providing vital support to families impacted by CHD. The organization’s programs include family support through various initiatives, a bereavement program for those coping with loss, and a scholarship program that helps meet unique, family-identified needs. www.montanabravehearts.org
Nebraska
Nevada
Heart Families of Nevada – We create curated gift baskets for newly diagnosed heart families to remind them they are supported during their hospital stay. Each item is specific to help parents bond with their baby and take care of themselves too. We also offer emotional support parent to parent via text messaging to stay in contact as much as they’d like. https://www.heartfamiliesofnevada.org/
New Hampshire
Heart Within A Heart Caring™ – Program embodies the charitable core of the Heartfelt Dreams Foundation mission. Knowing first-hand the challenges facing families with children born with congenital heart defects, young adults seeking knowledgeable care, and older adults struggling with a life-long condition, we are striving to be able to offer support in several forms. https://www.heartfeltdreamsfoundation.org/our-story/
New Jersey
New Mexico
Lexiam Heart Foundation – To provide support to children and families affected by Congenital Heart Defects (CHD), with priority given to families residing in New Mexico, through financial assistance, community resources to support education and emotional wellness, and to raise public awareness of Congenital Heart Defects. https://lexiamheartfoundation.org/
New York
Zipper Buddy Foundation – Provides philanthropic support for families with a medical burden due to a child with a CHD. Through planned charitable events, partnerships with individual donors, organizations and corporations, we raise funds to help ease the burden. Together, we are committed to making a meaningful difference in the lives of children and families facing the same journey we did and continue to face. https://www.zipperbuddy.org
North Carolina
Heart 2 Heart Collaborative – is a non-profit organization made up of parents, caregivers, and hospital staff who believe in quality, holistic patient-family care for heart families at the Duke Pediatric & Congenital Heart Center. In order to effectively impact patient-family care, we collaborate with providers, strengthen support for families, and educate ourselves and others as we work to enhance the heart family experience. https://www.nchearts.org/
North Dakota
Ohio
Congenital Heart Alliance of Cincinnati – The Congenital Heart Alliance of Cincinnati (CHAoC) is made up of a dedicated group of volunteers, most of whom have been affected personally by CHD. We are loved ones, parents, or grandparents to children born with CHD, adults surviving with CHD, and medical practitioners who work tirelessly to care for those with CHD. https://chaoc.org/
Oklahoma
Beats for Love Foundation -We are promoting and creating plans for heart health, CHD and organ donation awareness.https://www.facebook.com/profile.php?id=61586716506092
Oregon
Pennsylvania
TriLeo Foundation – TriLeo Foundation organizes and operates community events raising funds and awareness to support families affected by congenital heart defects.Currently we are focused on raising funds to support organizations in Pennsylvania who are engaged in research to solve and treat congenital heart disorders as well as support for families dealing with children diagnosed with CHDs. We can imagine a day when our organization grows to provide direct support to families in Pennsylvania and beyond as well as funding our own research to better understand causes of CHDs and develop world class interventions. www.trileo.org
Beats for Bella – A 501(c)(3) nonprofit raising awareness and funds for congenital heart defect (CHD) research by sharing Bella’s story and supporting life‑saving advancements in treatment and quality of life for children and adults with CHD. beatsforbella.org
Heartfest – Our founders, Heidi and Chris Todd, started this organization after their daughter, Elizabeth, was diagnosed and born with Hypoplastic Left Heart Syndrome, also known as HLHS. HLHS is a type of Congenital Heart Defect (CHD). We provide funding for dedicated research on the cause and prevention of Congenital Heart Defects (CHD) and support initiatives that extend and enrich the lives of children born with CHD. https://www.heartfest.org/
Rhode Island
South Carolina
Emerson Rose Heart Foundation – We provide spiritual, emotional and financial care during times of crisis for those battling CHDs in our state and internationally. We strive to aim to change the future of those affected by CHDs through quality improvement projects and research. We communicate about and advocate for the #1 birth defect in all we do. We share that there is always hope and joy to be found in the darkest of times in the Gospel. https://emersonroseheartfoundation.org/
South Dakota
A Cure for Cora – family‑led nonprofit raising funds specifically for advancing research toward a cure for congenital heart disease and supporting CHD families through community programs. http://www.instagram.com/acureforcora
Tennessee
Texas
The Graeme’s McDaniel Foundation – On December 18, 2012 our son, Graeme, was born. We had an emergency delivery after the doctor detected his heart rate in the 70s at my 34 week appointment. He was diagnosed with Double Outlet Right Ventricle, Malposed Great Vessels, VSD, Coarctation of the Aorta, Straddling Mitral Valve, Aortic Valve Hypoplasia, and Complete Heart Block. He was rushed to the Texas Medical Center where he underwent a coarctation repair, a pacemaker was placed, and a Pulmonary Artery band was placed. He lived a happy, full 2 1/2 years before his little body just couldn’t do it anymore on May 3, 2015. We are so blessed that we were able to spend two and a half years with him. He has taught us so much about family, love, and the gift of children. We are committed to keeping Graeme’s name and memory alive. This is how The Graeme McDaniel Foundation came to be. We hope that by hosting yearly events like Graeme’s Run, Graeme’s Gala, raising funds for CHD research, and supporting heart families as they travel for care, we can continue to share him with the world and make him proud. https://graememcdanielfoundation.org/
NICU Helping Hands – created in the summer of 2010 when we recognized an overwhelming need in Fort Worth, Texas for local organizations that support parents both educationally and emotionally. Since opening our doors, NICU Helping Hands has not only served its local community, but has the privilege of serving families all across the country who are looking for education, support, and a helping hand during one of the most difficult journeys they will ever make. Recognizing that the journey doesn’t end in the hospital, NICU Helping Hands developed their five key programs to meet the needs of families throughout their journey. These programs include Project NICU, One-on-One Mentoring Program, Family Assistance Program, NICU Mom Connect, Angel Gown® Program. The mission of NICU Helping Hands is to develop hospital- and community-based programs that provide education and support for families with babies while in the NICU, during their transition from hospital to home and in the event of an infant loss. https://nicuhelpinghands.org
Utah
Intermountain Healing Hearts. Supporting families of children and adults with Congenital Heart Defect (or CHD) and childhood onset heart disease across Utah and the Intermountain West, providing resources and a community of care. – A very active organization with regular meetups and lots of support for the CHD community, including heart-angel parents. https://ihhearts.org
Vermont
Virginia
Myannas Heart Totes – Providing comfort, hope and love to children and adults after open heart surgery. The totes are delivered to INOVA Children’s Hospital child life specialists where they will be distributed to children after heart surgery or are mailed to heart warriors found on Instagram who are fighting their heart battles daily. Donations are always appreciated. Myannas Heart Totes is a Non-Profit 501(c)3 Charitable Organization. https://myannasheart.wixsite.com/myannasheart
Washington
West Virginia
Wisconsin
Wyoming